We are saving the day this March for Henry
Hero Name: Purple Torch
Purple Power: Spreading purple awareness and raising purple funds
Hero Mission: I’m saving the day this March for the 270,000 people in Australia facing the challenges of epilepsy by participating in Make March Purple.
All heroes need their Sidekicks, so please show your support by donating to my page. All funds raised will provide information, education and training and vital support services to people living with epilepsy.
Thank you for your support!
My Achievements
Updated Profile Pic
Made a Self Donation
($27 or more)
Reached Fundraising Target
Reached $1,000 in Donations
Reached $2,000 in Donations
My Updates
Be a Purple Hero for Henry!
Tuesday 18th MarOur journey with epilepsy started for our family in August 2023 when we noticed Henry having moments where he seemed to be not listening, day dreaming. But as time went on and we noticed more of these so we went to the doctor to see if our suspicions were correct! It was confirmed then Henry had absence epilepsy and was having upwards of 10 to 15 of these seizures a day.
He started on some anti seizure medication which reduced the number but didn’t stop them all together. Over the course of 2024 he trialed a few different medications until we found a combination of two medications that seemed to bring them to a stop.
Or so we thought; on 14th January 2025 Henry had his first Tonic clonic seizure (or grand mal seizure) while in the car with me and grace while travelling to work.
Honestly this was the scariest moment of our lives! Henry, Grace and myself were in the car on my way to work just like any other day. One minute he was picking songs then next our whole world felt like it turned upside-down In the seat next to me.
After a scary 3 minutes of panicking, calling ambulance and finding somewhere to pull over his seizure stopped and we got him to hospital! This was scary for me and grace but poor Henry has no memory of anything at all.
Since then he has had 12 more seizure that can happen any day or anytime, he has had even more medications added to his daily schedule ( 8 tablets a day). However we may never know why Henry has epilepsy but we are getting better at helping him manage it!
March is Epilepsy awareness month and my hope is to make people in our lives more aware of what to do and how to help someone like Henry with epilepsy!
Help us raise awareness about all aspects of epilepsy and it effects and raise for more research in how to help the people living with it.
Donate today and on March 26th Luke and I will complete the Purple Muck challenge! Helps us reach our target and watch on as we get all purple and mucky in the name of epilepsy!
ShareThank you to my Sponsors
$820
Pyree Casters
$116.05
Ptech Group Pty Ltd
$108.67
Sharon Solomon
Best wishes to you Henry and your family
$105.50
Malcolm Oke
Stressful time for your family getting Henry’s medication right, but as a wise man once said to me(Luke on Monday night),”The day’s are long, but the year’s go quickly’… Hoping Henry gets his medication sorted our quickly x.
$105.50
Uncle Damo & Aunty Fee
Thinking of our little mate during these worrying times. You got this guys & we are with you all the way.
$105.50
Con & Courtney Watts
$79.13
Brett W
As I only know this from Henry's perspective, also having had grand mal seizures when younger, I am aware how frightening it was for those who witnessed it. I have been seizure free, although still on medication, so I hope this can encourage you that Henry can live a normal life with very few restraints, which I sincerely hope he does.
$79.13
Rachel And Aidan Payer
With you guys however we can help.
$52.75
Claire Bowden
$52.75
Kim
$52.75
Trent Boundy
$52.75
Tracey Coulton
Big hugs xx
$52.75
Jaimie Harding
Getting behind this for my fav little man H! Love aunty Jaim and uncle Luke xxx
$52.75
Erin West
$52.75
Veronica Johnston
Hi Lana and Luke , we also have been affected by epilepsy. Christopher’s Daughter Pippa had many seizures. She never medicated but atm seems to have grown out of it. There are so many different types of epilepsy. I hope your journey isn’t too hard.
$52.75
Chris Apps
Warrior!
$52.75
Hayley Maxwell
Love the Maxys xx
$52.75
Scott Wells
Soo sorry to hear, but you’ve got this. Seriously everyone’s got something going on, or they’re lying. Thinking of you guys, and hope this helps a little x
$52.75
Brad Ison
Hang in there young Henry! I hope you can have a big win over this terrible condition. Hopefully one day I’ll be playing next to you in the Bottle Green for Nowra one day. Wishing you all the best mate
$52.75
Aneta Richards
$52.75
Trent And Angela Smith
$50
Holly Costain
Sending our love to you all. Such a scary time you are all navigating! X
$50
One Stop Homes
$42.20
Thomas
$28.49
Lisa Rooney
You guys are so strong... which makes both Henry and Grace even stronger. Don't forget to ask for help if and when needed.
$28.49
Chris Jarius
Thinking of you all 🥰
$26.38
Lana Bowden
$26.38
Kev And Di Lewis
Such a brave superhero.
$26.38
Nanny
$26.38
Phil Duke
$26.38
Dianne Bowden
Henry, I just love that you are following the Bowden tradition of being a cricket 🏏 player. Pop Bowden would be so proud of you and Grace
$26.38
Amy-lee Houghton
Love you Mate 😘
$21.10
Nan & Pop Tippett
$21.10
Nadia And Dan Ashbolt
Thank you for working so hard to raise money for this debilitating and traumatic condition. Go Henry, you're the most brave and resilient boy I know. Sending you all our love xxx
$21.10
Damian Mason
$21.10
Joshua Costain
Just for you little Man
$21.10
Anonymous
$21.10
Wendy Miller
Well done Lana and Luke for raising awareness for all types of epilepsy. We love our Henry 😊
$20
Sharon Evans
Thinking of Henry & so many others x
Henry, All the boys at the Pyree Casters have got your back. In a few years you will be fishing with us mate.